Sky
Cubacub
Chicago, Illinois
“I know most of my friends in the disability community, including myself, it seems to me like this is a genocide. I mean, it’s very obvious – not seems – that it is a genocide.”
Ryan Roach: To start, could you let us know your name and how you identify?
Sky Cubacub: I’m Sky Cubacub and I use they/them pronouns. I identify as disabled. I have non-apparent disabilities. I have anxiety, panic disorder, depression, CPTSD62, and other mental illnesses, along with polycystic ovarian syndrome and a mysterious stomach disorder that is still undiagnosed, annoyingly. I am non-binary, I’m queer. I’m half Filipinx, half white. [Laughs]
RR: What has your experience been like during the pandemic?
SC: Well, I’ve had mono since December, so that’s been interesting to have [laughs] during the pandemic ‘cause I already was kinda quarantining. Not on purpose, just out of not being able to be awake for more than like two or four hours at a time.
So the first couple months of the pandemic I was really asleep. But when I started to get a little bit more energy, when my mono was getting a little bit better, I started making facemasks. I was especially interested in making the clear-window facemasks. I had to test it for a couple months, ya know, to make sure that they were good. Everybody kept on being like, “Put it up right now!” But I don’t like selling anything before I’ve tested them, and I wanted to work on having a lot of different accessible attachment styles. In the first week that I had them up, I already had two articles written about them. And so I’ve just been working on those orders ever since.
RR: Do you have any accommodations, supports, or outside needs that were interrupted by the pandemic? And, if so, what did that look like for you?
SC: A lot of the pandemic is actually a lot more accessible to me [laughs] than usual because I have sensory sensitivity. I have environmental illness/multiple chemical sensitivities, whatever you wanna call it, but so wearing the masks all the time is actually so much better for my allergies. And also not having anybody get close. I didn’t really know how extreme my multiple chemical sensitivities were until I was in college because I just thought it was normal to have all unscented things. But then all of a sudden everybody, like, loved incense in their dorm rooms or something. I was like, “I am dying. I cannot think anymore ‘cause my brain is so foggy.” So it’s kinda a lot more accessible for me. And also, you know, I already had air purifiers running a bit. But now I just get an excuse to be like, “I need ten air purifiers.” So now I can breathe so well. [Laughs].
RR: During the pandemic, the government and media have deemed the chronically ill, disabled, and immunocompromised communities as “vulnerable.” What are your thoughts on the terminology of “vulnerable”?
SC: [Sighs]. I mean, I feel like I’ve seen less stuff about “vulnerable” and more the attitude of vulnerable being expendable. I’m fine, like, generally with the word “vulnerable” ‘cause I like the word “vulnerable.” But I think it being equated to expendable is really disgusting. So I guess I find that part of the media completely distressing. I mean, I know most of my friends in the disability community, including myself, it seems to me like this is a genocide. I mean, it’s very obvious – not seems – that it is a genocide.
RR: And touching on the topic of this being a genocide, what are your thoughts on how the government and the media have been treating these populations that they have deemed “vulnerable”?
SC: I mean, extremely disgusting. I just – I fucking hate Trump. I think he’s evil and I hope he dies. I do not apologize for that. He has killed so many people, it doesn’t matter. I hope that COVID takes him. I just feel like the past couple years have been such a set up for all of this. And it seems as soon as Trump said he was going to run for president, I immediately knew he was going to be president. I did not have any of that, “Oh no, somebody else is gonna be president ‘cause it’s too ridiculous.” But, ya know, everything is ridiculous. The world is ridiculous. So like obviously he’s gonna be president. Also the U.S. has a history of voting for celebrities, ‘cause, like, duh. We like celebrities for some reason even if they literally know nothing about anything. So I’m pretty sure that he’s gonna win again. Which is extremely distressing. Also, I didn’t mean to be like the pandemic is great for me, but the precautions I think are good for me. Like, definitely even if they figure stuff out, like, I’m probably gonna still wear masks all the time in public. I mean, I got mono in December, and I still have no clue how I got mono. But like, besides the mono, I haven’t gotten sick at all since, or besides, that. I feel like I usually get sick pretty often, so I feel like this is just healthier for me. But I don’t know. Sorry, now I’m so upset thinking about Trump. [Laughs].
RR: No, it’s honestly upsetting. I’m actually in D.C. right now and he’s holding an event tomorrow, and just knowing it’s happening in the city is – it makes me so confused and nervous. It’s a wild administration. I guess touching on the administration and media correspondents, a lot of their messaging the past few months has really focused – and they’ve kinda done this already – has really focused on reopening the economy while sacrificing populations they deem “vulnerable.” And they keep having this conversation about so-called “vulnerable” populations, yet invite no one from these communities to speak for themselves. Why do you think that is?
SC: Because, I mean, they’ve always dehumanized us, so why would they ever start? [Laughs]. They don’t care, it doesn’t matter to them. They think that disabled folx and POC folx are expendable. I would never expect them to invite us into the conversation in any way. I don’t know, I’m just ready for no more presidents at all. Like, completely just tear it down. I mean, I’ve wanted that forever [laughs] but especially now.
RR: No, that’s definitely what we need.
SC: Yeah, I just feel like it’s the only option. Just get rid of the presidency fully. One person shouldn’t have that much power in general. I mean, even a group of people shouldn’t have that much power.
RR: During the pandemic, society has been able to accommodate the general public with accommodations, like work from home, that have been asked for previously by the disabled, chronically ill, immunocompromised, and neurodiverse communities, yet these communities were typically denied. Why do you think society has been able to accommodate the general public when these accommodations have been denied previously?
SC: I mean, now because able-bodied folx are being affected, so they’re like, “Oh, of course we can do it.” Like, of course you can do it, but you could have done it before. But they want it to be exclusive so that school wasn’t too accessible to people of marginalized identities. And they wanted to make it so we could never advance enough to be able to overthrow them.
I had to take off a semester of school in college, and if I could have been remote learning, I probably could have just done it and not taken off a semester. Then when I came back to school, I wanted to take off a full year, but I had a full scholarship to the school, so they felt like they owned me. And I remember going to one of the dinners while I was sick and this woman grabbed my arm so tight and was like, “You better come back! Like as soon as possible.” She was pretty threatening and just laughed but in a very menacing way. So I kind of felt forced to come back too soon.
RR: Moving forward, how would you like to see the government and society start responding to the COVID-19 pandemic?
SC: I would just like people to take it seriously in general. In Chicago, when you go near where there’s like a lot of bars, there’s just tons of people inside the bars not wearing masks and drinking. And it just doesn’t make any sense. I definitely would rather be in Chicago than probably anywhere else ‘cause I feel like it’s a big city that is taking it somewhat seriously, but also we have the resources of a big city but then, at the same time, it’s not as bad as in, like, New York City. I don’t know. I am a little bit dreading Halloween. Like, for some reason, our mayor is saying that we can still do Halloween. She’s put up precautions. She’s like, “Everybody do social distancing and wear masks all during Halloween!” But I still feel like that’s a really bad idea. [Sighs]. So I don’t know, that’s gonna be really bad. Like, when I was little, when I was four or five, it rained really hard during Halloween and I was really bummed. But what me and my mom did was just call everybody on our landline in her phone book and I trick or treated over the phone, and it was so cute! I loved it! I’m like, “Man, now we have FaceTime so we could still even dress up and show the people your outfit. Like you do not have to go out.” The fun part of Halloween is showing people your outfit. I don’t know, not necessarily the candy. Maybe that’s just me – I’m a clothing-centric person. [Laughs].
RR: That’s really cute, I love that. In addition to the pandemic, the United States has experienced uprisings across the country in response to the murders of George Floyd and Breonna Taylor by police. Uprisings in physical spaces are not always accessible to all folx. Have you been involved at all with the uprisings over the past few months? And, if so, what has that looked like for you?
SC: Yeah, for sure. I mean as soon as they were starting, I started making these masks. I had gotten this fabric from a place called Swatch-On, which is where I get, like, my nose wire fabric, and it’s a neoprene that’s embedded copper so it makes it antibacterial, and also like more water resistant. So I had just gotten some of this fabric and I just started making hundreds of these masks. And they’re Black, so it’s a little bit more anonymous, whereas my other masks are too recognizable. So yeah, the first day I think I made 60 of them. And I had three different people pick up batches of 20 to give out. And then I just consistently made a bunch more, like, every day that week. And then I had gotten more employees, so now I always have a nice big stack of them. And I’ve given them out to tons of places, like Brave Space Alliance in Chicago, which is the first Black-led Trans-Queer community center in the south side of Chicago. I gave a big batch to the Night Ministry, which works with mostly unhoused youth, especially LGBTQ youth. I think these masks are better for unhoused folx. And also it’s good for protestors, ‘cause, like, if it got pepper spray on it or something, I think it’d be easier or more resistant to that than the cotton masks. But yeah, I was doing that, and then I also was reposting lots of resources on my Instagram. Although my main account got flagged for a little bit, so I was trying to be careful on my main account ‘cause they were saying I was “bullying police.” [Laughs]. I just rolled my eyes. I rolled my eyes really hard. But then, on my Radical Disability Collective Instagram, I just turned that into a protest resource area. So all of the protest resources I thought were useful, I got image descriptions written for them because most of the protest resources that have been being circulated were totally inaccessible to blind and visually impaired folx.
RR: Why is it important for you to share your story?
SC: I mean, I’ve seen how sharing my story has helped other people feel comfortable in their own bodies, and feel comfortable dressing up and being out and, also, especially talking about disability and seeing it not as a negative thing, or like talking about mental illness and seeing it not as a negative thing. So, I just had a panel talk earlier today and they were asking about how, “Oh, in academia they usually tell you to be more objective, but, like, everything you do seems so personal.” But I really believe the more hyper-specific and more personal that you make something, the more universal that it is. It’s just, like, so many people find how parts of your story resonate with them. I don’t know. Originally, when I started my clothing line, I didn’t necessarily mean for myself to be the main face of my clothing line. I wanted it to be really about all of the different people that I clothed, which is also why I didn’t call the clothing line, like, my own name. I called it Rebirth Garments instead. But yeah, then I saw it really did help people to hear me talk all about my own experiences. So that’s why I do it.